NORD (National Organization for Rare Disorders)

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Alternate title

Rare Disorders Database


This database from the National Organization for Rare Disorders contains more than 1,200 reports on rare disorders. (Approximately 7,000 considered to be rare have been reported in the U.S.)  These reports include information on symptoms, causes, treatments, clinical trials, and sources of help, such as patient support groups and voluntary health organizations. Unlimited access to reports, articles requires an additional fee.


User tools and features

Users have the ability to perform a search of NORD’s rare disease reports by typing a diseases name/synonym into the search text box.  There is also an alphabetical index of rare disease reports.  It may be browsed to locate information.  Tabs are located at the top of the database home page which link users to specific information for patients, health care professionals, etc.

A link to more information resources and tools (not part of NORD) are accessed with a click on a link on the left side of the home page.

Dates covered

Latest available information.

Updating frequency

As information becomes available.


National Organization for Rare Disorders reports (information found in current published research, government agency reports, practice guidelines, etc.)

Type of coverage

Association reports, plus links to Web-based information resources, such as government agency Web sites.

Producer/content provider

National Organization for Rare Disorders

Vendor/electronic presentation provider

National Organization for Rare Disorders

Core Subject(s)